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PatientsLikeMe is committed to putting patients first. We do this by providing a better, more effective way for patients to share real-world health experiences with each other and organizations focused on their conditions.

PatientsLikeMe was co-founded in 2004 by three MIT engineers - brothers Benjamin and James Heywood and longtime friend Jeff Cole - following the diagnosis of their brother and friend Stephen Heywood with ALS (Lou Gehrig's disease) at the age of 29. Inspired by Stephen's experiences, the co-founders and team conceptualized and built a health data-sharing platform that we believe can transform the way patients manage their own conditions, change the way industry conducts research, and improve patient care.

Today, PatientsLikeMe is a for-profit company, but not one with a "just for profit" mission. We follow four core values: putting patients first, promoting transparency ("no surprises"), fostering openness and creating "wow." We're guided by these values as we continually enhance our platform to help patients share and learn from real-world, outcome-based health data. We've centered our business on these values by aligning patient and industry interests through data-sharing partnerships. We work with trusted non-profit, research, and industry partners who use this data to improve products, services and care for patients.